First Major Survey of Multiple Sclerosis (MS) Nurses Highlights Significant Disparities in MS Nursing Across Europe

Brussels, May 26, 2010 (ots/PRNewswire) - The first major survey ofEuropean Multiple Sclerosis (MS) nurses revealed that nearly one inthree nurses (31%) reported that standards of MS care are notadequately maintained in their country. The results of this surveywill be presented for the first time on Friday 28 May, via a livewebcast at the European MS Platform (EMSP) Annual Congress inStuttgart, Germany.

The MS-NEED: European Survey polled 280 MS nurses in the CzechRepublic, Finland, Germany, Italy, Poland and the UK, and foundconsiderable variations in the availability of specialised trainingand education for MS nurses across Europe that could potentiallyimpact equality of care for people with MS across Europe. Overall,one in five nurses reported that they have not received adequatetraining and education to support them in their day-to-day role.

Amy Perrin Ross, President of the International Organization ofMultiple Sclerosis Nurses (IOMSN) said, "The findings from MS-NEED:European Survey show how far MS nurses have come in expanding theirrole but also identify further areas for development. A benchmark andstandard for training and certification of MS nurses across Europe isneeded to ensure equality of health service provision and to improvethe quality of life of MS patients and their families."

The survey, conducted by the EMSP in cooperation with the IOMSNand Rehabilitation in MS (RIMS), the European network of MS centres,also highlighted variations in clinical practice, access to supportservices such as rehabilitation, and participation in research.

"MS nurses provide critical information, support and advice to MSpatients and their families throughout the course of this chronic,disabling disease. By providing this specialised, expert service theycan make an important impact on the overall quality of life ofpatients. It is therefore important to recognise MS nursing as aspeciality within Europe and to find a way to unify, define andbenchmark care provision to avoid geographical inequalities inpatient care" said Professor Hans-Peter Hartung (Professor andChairman, Dept. of Neurology Heinrich-Heine University, Germany).

Hear the results of MS-NEED: European Survey for the first timeand the EMSP, IOMSN and RIMS recommendations for action on a Europeanand national level by logging onto the MS-NEED: European Survey live,interactive webcast on Friday, 28 May, at 12:30 CET using theinformation below:

Please click on the website link: http://www.emsp.org/ms-need/

The webcast provides you with a unique opportunity to learn aboutthe data and ask questions, in real-time, from leading global nursethought leaders.

What is MS?

Multiple Sclerosis (MS) is a complex, chronic, disabling disease.It affects twice as many women as men, and is usually first diagnosedbetween the ages of 20 and 40, at a critical stage in adult life withoften considerable family and work responsibilities. To date, no cureexists. It is estimated that there are more than 500,000 people withMS in Europe.

European MS Platform (EMSP) represents their interests at theEuropean level, working with the European bodies on behalf of its 33national member organisations to achieve its goals of high quality &equitable treatment and support for all citizens suffering from MS.

The MS-NEED: European Survey was conducted by AdelphiInternational Research and was supported by an unrestrictededucational grant from Novartis Pharma AG.

ots Originaltext: Novartis AGIm Internet recherchierbar: http://www.presseportal.de

Contact:CONTACT: For more information please contact: Christoph Thalheim, EMSPSecretary General, Tel: +32-2-305-8012, Mob: +32-485-47-99-86,Email:christoph.thalheim@emsp.org

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First Major Survey of Multiple Sclerosis (MS) Nurses Highlights Significant Disparities in MS Nursing Across Europe